Scotland ITP Support Group 14th December 2021

Updated on
by lucys

During the Covid19 pandemic all of our ITP Patient Group meetings have taken place on Zoom. This is a recording of the Scotland ITP Patient Meeting was held on 14th December 2021. The expert was Dr Catherine Bagot. For details of further Patient meetings please visit our website at www.itpsupport.org.uk.

To view the document produced by the UK ITP Forum mentioned by Dr Baggot click this link, https://b-s-h.org.uk/media/20564/vaccine-guidance-from-the-uk-itp-forum-working-party-on-itp-version-2.docx This is a live document and is under regular update.

You can download a copy of the Shared Decision Making document for FREE from the ITP Support Association website at https://www.itpsupport.org.uk/index.p… or if you require a hard copy of it you can email info@itpsupport.org.uk

Remember, issues with tiredness and fatigue are very debilitating. These can be discussed with your clinician and it is necessary to find ways to deal with these effects. Keep a diary of how you are, and work out how you can do small activities interspersed with rest. To download a copy of the PDF Booklet, titled ‘Fatigue in ITP please click this link: https://www.itpsupport.org.uk/downloa…

There is a wonderful video on the ITP Support Association You Tube Channel of a presentation by John Semple to our annual convention earlier this year. It explains in very easy to understand language WHY ITP OCCURS. Thoroughly recommended.

Our Covid-19 Vaccine Survey is still open, we have added some additional questions covering the Booster vaccine jab. We would also welcome any youngsters with ITP (18’s and below) who have had their vaccine to complete the survey. Please go to our website at: https://www.itpsupport.org.uk/index.p… to take part. The initial survey results can also be found on our website. https://www.itpsupport.org.uk/index.p…

Another excellent video that folk may wish to check out about ITP and bleeding is on the ITP Support Association You Tube Channel. Again, it was from a presentation to our annual convention earlier this year by Dr Nichola Cooper on bleeding in ITP. Well worth a watch.