England and Wales ITP Support Group Meeting 25th November 2021

This is the recording of the England and Wales ITP Support Group Meeting that took place on Thursday 25th November with Prof. Adrian Newland Chair of the ITPSA, Mervyn Morgan CEO of the ITPSA, Rhonda Anderson Senior Patient Mentor and Board Members Derek Elston and Anthony Heard.

You can download a copy of the Shared Decision Making document for FREE from the ITP Support Association website at https://www.itpsupport.org.uk/index.php/en/home/shared-decision-making or if you require a hard copy of it you can email info@itpsupport.org.uk

Remember, issues with tiredness and fatigue are very debilitating. These can be discussed with your clinician and it is necessary to find ways to deal with these effects. Keep a diary of how you are, and work out how you can do small activities interspersed with rest. To download a copy of the PDF Booklet, titled ‘Fatigue in ITP please click this link: https://www.itpsupport.org.uk/download/Fatigue%20in%20ITP%202019.pdf

One thing to mention about “alternative medicines”. Many people have asked us about things like aloe vera juice or papaya leaf extract to help platelet count. Avoid these things, there is NO evidence whatsoever to suggest they will help platelet counts and may well cause more harm than good. Sadly, such things are no more than wishful thinking so AVOID.

Our Covid-19 Vaccine Survey is still open, we have added some additional questions covering the Booster vaccine jab. We would also welcome any youngsters with ITP (18’s and below) who have had their vaccine to complete the survey. Please go to our website at: https://www.itpsupport.org.uk/index.php/en/16-home/217-itp-patient-covid-19-vaccine-survey-2021 to take part.

The initial survey results can also be found on our website. https://www.itpsupport.org.uk/index.php/en/16-home/238-itp-patient-covid-19-vaccine-survey-spring-2021-initial-findings