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ITP Convention 2018 - Roundup

We recently held our Annual ITP Patients Convention, this time, following requests from members we took the Convention to the beautiful City of Chester and its historic racecourse in the North West of the Country.

Derek Elston, trustee of the ITP Support Association, tells PharmaTimes about his experiences of being diagnosed and living with the rare bleeding disorder

How were you diagnosed with idiopathic thrombocytopenic purpura and what were your symptoms?

I was first diagnosed in 1993 with ITP after working in the Far East for 14 months. At the end I was fairly shattered both with the intensity of the work and commuting regularly. After about four weeks, I decided to visit the doctor. He took a sample of blood.

First Local ITP Group Meeting in Devon

We recently held the first Local ITP Group Meeting of the year. The meeting was held in the Ancient Stannary Town of Ashburton in the heart of the South Devon countryside, close to the edge of Dartmoor. We must say a big thankyou to member of the ITP Support Association, Sally Rhodes, who stepped forward and volunteered to organise a suitable venue for the meeting.

 ITP Pocket Log - looking for ideas for Version 2

At the recent ITP Convention, Mervyn Morgan made a short presentation about the ITP Pocket Log and the progress that has been made since its launch in 2017. Since the app went live there have been over 400 downloads plus some excellent feedback.

We are now looking to ITP Pocket Log Version 2, so if anyone has any ideas of features, they would like to see in version 2 please email your ideas to This email address is being protected from spambots. You need JavaScript enabled to view it..

Putting people with inherited and acquired bleeding disorders at the heart of multidisciplinary research. The official Top 10 research priorities:

ITP Partnership Prospectus Published

We are also pleased to announce the publication of the ITP Support Associations Partnership Prospectus for 2019/20. This document helps to explain the tremendous reach of the Association (the only National ITP Patient Support Charity) and opportunities that are available for collaboration with potential partners such as sponsorship for items such as the Website, Platelet newsletter and our Booklets. In addition, there are opportunities for partners to work with us at events such as our Annual Convention.

ITP Pocket Log

We are pleased to announce that the Android version of the app is live! It is available to download – free of charge – from Google Play, use the search term “ITP symptom tracker”.

The IOS version has been available for some time from the Apple App Store. 

Everyone involved in the project would like to thank those who sent in ideas for the app after the outline of the project was shared at the ITP Convention last year.

Speakers Presentation Slides from the 2018 ITP Support Association Convention

The Speakers Presentation slides from the recent ITP Support Annual Convention (held in Chester) are now availbale to view. All slides are in PDF format.

Pauline Woods, raising money for ITP, in her own words

As someone with ITP, on a good day I might not feel anything at all, other days I'm covered in bruises then on bad days, I feel like someone has poured all the energy out of my body and I could literally sit down wherever I am (in the office, in the street), and sleep. I have also been asked, on more than one occasion, 

Speakers Presentation Slides from the 2018 ITP International Global Alliance Meeting

The 2018 ITP International Global Alliance meeting was hosted by the ITP Support Association UK and organised by the ITP Support Assocation (United Kingdom) and the Platelet Disorder Support Association (USA), the meeting was held in Chester.

Speakers presetnation slides will be posted here as they become availbale. All slides are in PDF format. The Presentation Slides are the copyright of the individual speakers, the slides are for viewing only, copying and printing is restricted.