The ITP Support Association

Coronavirus (Covid-19) - Updated Information Statement from the ITP Forum & ITP…

Coronavirus (Covid-19) - Updated Information Statement from the ITP Forum & ITP Support Association - 23rd March 2020 Information for adult patients with immune thrombocytopenia in the setting of COVID-19 pandemic (Please note this equally applies to children) Immune thrombocytopenia (ITP) is not…

ITP Support Association - UK Convention - London 2020 - Change of Date

UK ITP Convention #ITPLondon2020 Following a meeting of the UK ITP Support Association Board, we have made the decision to postpone our UK ITP Convention which was due to take place in May. The event will now take place on Saturday 10th October (same times, same venue), Royal College of…

New fundraising partner - Viginmoneygiving

Virgin Money Giving >>> The ITP Support Association are pleased to announce that they have joined the fundraising and donation platform #VirginMoneyGiving, this platform is more widely recognised than our previous fundraising partner 'Wonderful' which is due to cease operations at the end of…

Dealing with Difficult Emotions after ITP Diagnosis

In these days of Social Isolation as a result of the Covid-19 emergency many people are understandably feeling stressed and under pressure due to the uncertainty of the current situation. One of the Associations Patient Mentors recently produced an excellent article which was published in the…

The March 2020 edition of the Platelet journal is available online

The March 2020 edition of the Platelet journal is available online The March 2020 edition of the Platelet Journal is now available to download from the members area of the website, if you have not yet joined the ITP Support Association click here. The print version is currently at the printers and…

ITP Support Association Patient Perception Survey 2020

ITP Support Association Patient Perception Survey 2020 Over the years the ITP Support Association has carried out many surveys covering the subject of Immune thrombocytopenia (ITP). Many of you would have been aware that the association has now established a growing network of Local ITP Groups…

Coronavirus (Covid-19) Latest UK and Ireland Governments, WHO, NHS guidance and other trusted sources of info.

COVID-19 is a new illness that can affect your lungs and airways. It's caused by a virus called coronavirus. Below are links to various NHS and UK Government pages that contact the latest advice on coronavirus. Get coronavirus (COVID-19) advice Find out what to do if: you think you have symptoms…

Scotland ITP Group show their support for Rare Disease Day 2020

Scotland ITP Group show their support for Rare Disease Day 2020 The first Scotland ITP Group meeting of the 2020 took place in Edinburgh recently and the group showed their support for Rare Disease Day 2020. A big thank you to group organiser Sue Hussin for an excellent meeting of the group at the…

Leaving a legacy

Thank you for considering leaving a gift to the ITP Support Association in your will and helping to fund the work of the ITP Support Association and research into Immune thrombocytopenia. There are 3 main types of gift you can make: residuary – a share in, or all of, what's left of the value of…

New ITP Patient Resources from Novartis UK

Novartis UK have published an excellent page on their website containing some great #ITPPatientResources, a series of videos, details of the ITP Pocket Log and advice about the ITP Emotional Burden. The videos and ITP Pocket Log were developed in collaboration with the @ITPSupportAssoc To view the…

Maesteg South Wales Local ITP Support Group

First meeting of the Maesteg South Wales Local ITP Support Group Monday 20th Jan saw the first meeting of the new Maesteg South Wales Local ITP Support Group, a lovely venue with some stunning scenery of the valleys. many thanks to Wendy Tucker for organising the venue. The next meeting in Wales…

First Meeting of the Broomfield Hospital ITP Support Group

First Meeting of the Broomfield Hospital ITP Support Group A huge thankyou to Dr Pavel P Kotoucek and his team at the Broomfield Hospital, Chelmsford for making all who attended the first meeting of their ITP Local Support Group welcome. We would also like to thank friend of the ITP Support…

Worcester ITP Support Group - First Meeting

Worcester ITP Support Group - First Meeting The first meeting of the new Worcester ITP Support Group took place on Fri 10th Jan. A big thank you to Jo Marlow. The next Worcester meeting will be in April (Date TBC shortly) Also thanks to Waitrose for making their Community Room available for the…

We are now publishing some of the excellent articles received from ITP Patients about their experiences with the condition.

If you have an ITP Story that you would like to share please contact us by email Contact us. We can share on this website and in our quarterly journal, The Platelet.