The ITP Support Association

UK ITP Forum Covid-19 update

The UK ITP Forum have updated their information for patients with ITP regarding coronavirus…

ITP Support Association - UK Convention - London 2020 - Virtual Convention

UK ITP Convention #ITPLondon2020 Following a recent meeting of the UK ITP Support Association Board, due to the ongoing Covid-19 pandemic we have made the decision to move to a 'Virtual' format for our UK ITP Convention. Please be aware that we are planning to hold our 'Virtual Convention' on…

International ITP Alliance: Updates and upcoming events

International ITP Alliance: Updates and upcoming events Our good friend, Nancy Potthast, Director of Marketing at the Platelet Disorder Support Association in the United States of America has produced this update for globalITP.org which is the website for the ITP International Alliance. First and…

Platelet - June 2020 Edition - Available to download

The latest edition of the Platelet (June 2020 edition) is now available to download, due to the Covid-19 pandemic printed copies may take a little longer than normal to be produced and despatched, therefore we will be making this edition free to download for the next few weeks. Enjoy some great ITP…

Cinderella study - Bleeding Disorder Survey

The ITP Support Association are proud to support Haemnet and the Cinderella Study survey! If you're a woman and have been affected by a #bleedingdisorder, please do get involved and complete this survey. Link https://haemnet.typeform.com/to/uWufTI The following is the text published by Haemnet…

A big shout out to Kidderminster Harriers Under 10s

Before the Covid-19 lockdown Kidderminster Harriers Under 10’s organised a Parents v Players Charity game to raise money for the ITP Support Association. A member of the team, George, has a sister who suffers with ITP, so the team wanted to come together to raise some money and promote awareness.

Global ITP Awareness Week Scheduled for Week of 21st September.

Global ITP Awareness Week Scheduled for Week of 21st September. Immune Thrombocytopenia (ITP) is the most common autoimmune bleeding disorder affecting 10 times as many people as hemophilia, yet is unknown to most. Beginning 21st September and ending on 25th September (Sport Purple for Platelets…

Webinar: ITP and Covid-19 Q&A - 16th April - Full Recording

Webinar: ITP and Covid-19 Q&A - 16th April - Full Recording The United Kingdom ITP Support Association has a proud record spanning 25 years, providing trusted resources and advice for those living life with ITP. We are acutely aware from the many emails, letters and telephone calls we have received…

2.6 Challenge - The Hare Family raise £245 on a treadmill

2.6 Challenge - The Hare Family raise £245 on a treadmill As part of the 2.6 Challenge Amanda, Will, Ellé, Ben & Delphi covered the distance of the London marathon on their home treadmill running and walking (for little legs and muscles) 26.2 miles to help support the ITP Support Association,…

Coronavirus (Covid-19) - Updated Information Statement from the ITP Forum & ITP Support Association - 23rd March 2020

Coronavirus (Covid-19) - Updated Information Statement from the ITP Forum & ITP Support Association - 23rd March 2020 Information for adult patients with immune thrombocytopenia in the setting of COVID-19 pandemic (Please note this equally applies to children) Immune thrombocytopenia (ITP) is not…

New fundraising partner - Viginmoneygiving

Virgin Money Giving >>> The ITP Support Association are pleased to announce that they have joined the fundraising and donation platform #VirginMoneyGiving, this platform is more widely recognised than our previous fundraising partner 'Wonderful' which is due to cease operations at the end of…

Dealing with Difficult Emotions after ITP Diagnosis

In these days of Social Isolation as a result of the Covid-19 emergency many people are understandably feeling stressed and under pressure due to the uncertainty of the current situation. One of the Associations Patient Mentors recently produced an excellent article which was published in the…

ITP Support Association Patient Perception Survey 2020 - Initial Results

ITP Support Association Patient Perception Survey 2020 Over the years the ITP Support Association has carried out many surveys covering the subject of Immune thrombocytopenia (ITP). Many of you would have been aware that the association has now established a growing network of Local ITP Groups…

We are now publishing some of the excellent articles received from ITP Patients about their experiences with the condition.

If you have an ITP Story that you would like to share please contact us by email Contact us. We can share on this website and in our quarterly journal, The Platelet.