ITP Support Association Convention 2018

Following last year’s well-received ITP Convention in London, several members approached us with a request that we should consider holding a future event in the North West of the country? Therefore, we are pleased to announce that our 2018 Convention will take place at Chester Race Course on Sat 27^th October from 10.00 am to 5.00 pm.

Bristol & Wales ITP Patient Day

on Friday 27th April from 1.30 - 5pm

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Don't forget the ITP Support Association Annual Convention on 27th October, details can be found at:

https://www.itpsupport.org.uk/index.php/en/itp-convention-18

The ITP Support Association and ITP expert teams from hospitals in Bristol and Wales invite ITP patients and parents of ITP children to attend a Patient Day at The University Hospital of Wales, Obstetrics and Gynaecology Seminar room, Upper Ground floor, University Hospital of Wales, Heath Park, Cardiff, CF14 4XW.

Prescription price increase from 1st April 18

Please be aware that from 1st April 2018 each prescription item price increased by 20p to £8.80. The prepayment certificate prices will remain the same price at £29.10 for 3 months and £104 for 12 months.

For further information please visit the Government website at https://www.gov.uk/government/speeches/nhs-prescription-charges-from-1-april-2018

Vacancy Book Keeper / Treasurer

The ITP Support Association is seeking a Book Keeper / Treasurer whose duties will be to:

monitor the financial administration of the charity and report to the Chief Executive.
oversee the charity’s financial risk-management process;
act as a countersignatory on cheques and online banking;

The March edition of the Platelet is now available to download from the members area of the website, if you have not yet joined the ITP Support Association click here.

The March edition has all the usual favourites, latest fundraising heroes, updates from the ITP office, the American Perspective, plus the latest ITP news.

To read this and previous editions of the Platelet go to the members area of the website.

Lexy Monks and friends

Back in October 2017, Lexy Monks and friends ran in the Manchester 10km Rough Runner to raise money for the ITP Support Association (Lexy's Mum has ITP). The run coincided with Storm Brian hitting the UK, hence the rather muddy conditions in the photograph. Despite the weather Lexy and friends completed the course and smashed their fundraising target (£150) by raising an incredable £485.20. Well done Lexy and Friends.

The I-WISh Survey - Now Open

Do you have immune thrombocytopenia / idiopathic thrombocytopenia (ITP)?

Would you like to share your experience of this disease?

A new data protection law is being introduced later this year in the United Kingdom. Therefore we are publishing a new Privacy Notice to show how we use and protect your information and anyone who is connected with The ITP Support Association. In addition everyone who joined the ITP Support Association online or renewed their membership online, there are additional options to chose regarding how we contact you within your membership profile.

ITP Pocket Log

We are pleased to announce that the Android version of the app is live! It is available to download – free of charge – from Google Play, use the search term “ITP symptom tracker”.

The IOS version has been available for some time from the Apple App Store.

Everyone involved in the project would like to thank those who sent in ideas for the app after the outline of the project was shared at the ITP Convention last year.

The 20th ITP Convention 2017

Royal Society of Medicine, London.

The 13th is considered by many to be an unlucky number so I am sure, some had misgivings about the date chosen for the annual convention for 2017. They need not have worried.

Join us

What are the benefits of membership?
Membership of the ITP Support Association mailing list brings you:

The Platelet, our quarterly journal, access to our 'ITP Friends' counselling volunteers, further information on living with ITP, treatment and the latest research, through our numerous free booklets and factsheets covering items such as insurance and Schools, a free ICH alert card in case of a bleeding emergency, access (through the Association) to our medical advisors for difficult conditions, concession ticket price for the annual ITP Support Association Conventions featuring visiting ITP specialists, and the opportunity to voice your opinion in occasional optional surveys to gather data on ITP (some from pharma agencies offer payment to participants).

About the ITP Support Association

Charity Registration No. 1064480

The ITP Support Association is a UK registered charity which aims to promote and improve the general welfare of patients, and the families of patients, with Immune Thrombocytopenia (Idiopathic Thrombocytopenic Purpura) by providing:Patient/parental/antenatal information and support

What does ITP stand for?

Immune Thrombocytopenia (An autoimmune disorder (Immune) causing a shortage of small cells in the blood known as platelets (Thrombocytopenic) Formerly known as Idiopathic (of unknown origin) Thrombocytopenic Purpura (bruising) .