The ITP Support Association

ITP Support Association switches to JustGiving.com

ITP Support Association switches to JustGiving.com ITP Support Association switches to JustGiving.com as its default fundraising / donation partner following the announcement by Virgin Money Giving that they would be closing their site from the 30th November and will no longer be accepting…

ITP Group Meetings - Meeting Schedule

ITP Support Association Group Meetings - New Dates Added England and Wales ITP Group Meeting Next Meeting: 7pm 25th November 2021 This will be an online Zoom Meeting - England and Wales ITP Support Group Registration Scotland ITP Group Meeting Next Meeting: 14th December 2021 at 7pm This will be an…

ITP Patient Covid-19 Updated Vaccine Survey 2021

ITP Patient Covid-19 Vaccine Survey - 2021 Our Covid-19 Vaccine Survey is still open, we have added some additional questions covering the Booster vaccine jab. We would also welcome any youngsters with ITP (18’s and below) who have had their vaccine to complete the survey. So far we have had over…

Free ITP Recipe Book with every order

With every order from our on-line shop from now (8th Nov) until 10th December we are including a free copy of our ITP Recipe Book (worth £5) Over 50 favourite recipes contributed by ITP patients, families and friends. ITP On-line shop

Making the right choices in ITP management and care

'Making the right choices in ITP management and care' – A shared decision-making toolkit for patients. To download click this link: Making the right choices in ITP management and care Groundbreaking new toolkit launched to support patients with rare blood condition to take ownership of their care…

Exafield UK online survey

My name is Kate, a recruiter from Exafield UK, medical market research company. I am hoping you will be able to offer support on a new study that we have been commissioned regarding chronic Immune thrombocytopenia (ITP). We are looking for Patients with chronic Immune thrombocytopenia (ITP), who…

UK Adult and PREGNANCY ITP Registry – Updates – September 2021

UK Adult ITP Registry – Update – September 2021 It has been another busy year for the UK adult ITP registry. The COVID-19 pandemic and lockdown restrictions meant that many of our ITP patients, clinicians and staff had to restrict their movement and stay or work from home throughout 2020 and into…

PROJECT LIVING WITH IMMUNE THROMBOCYTOPENIA (ITP) - Looking for patients

PROJECT LIVING WITH IMMUNE THROMBOCYTOPENIA (ITP) A Pharmaceutical client is looking for patients who have been diagnosed with immune thrombocytopenia (ITP) and would be willing to take part in a 60-minute 7-day online diary and a 60 minute interview on Microsoft teams. The purpose of the study is…

Living with ITP - common questions and concerns

Join us as we celebrate Sport Purple for Platelets Day and Global ITP Awareness Week with the presentation of the ITP Insights webinar, “Living with ITP: Common Questions and Concerns,” on Friday, 24th September from 7:00 PM (BST). This webinar will include a panel discussion of ITP experts,…

September 2021 Edition of the Platelet

The September 2021 edition of the ITP Support Associations Platelet Journal is now available to download, this edition looks ahead to ITP Awareness Week (w/c 20th September). Printed copies for those who selected that option will be despatched from our printers this week. Enjoy some great ITP…

“I wouldn’t have my children without plasma donors” says Manchester mum for Global ITP Awareness Week

“I wouldn’t have my children without plasma donors” says Manchester mum for Global ITP Awareness Week A MUM is calling for more people to donate plasma for Global ITP Awareness Week (September 20 to 24) after donors enabled her to have a family. Danielle Morley, 37, of Radcliffe, developed the…

Usability Study - Can you help?

In the context of the development of a novel self-injection device for the treatment of ITP, a global biopharmaceutical company is seeking patients diagnosed with Immune Thrombocytopenic Purpura (ITP) to be recruited for a simulated use (usability) study. The usability study will consist of…

Scotland ITP Patient Meeting August 2021

Scotland ITP Patient Meeting August 2021 During the Covid19 pandemic all of our ITP Patient Group meetings have taken place on Zoom. The August 2021 ITP Patient Meeting covered the Scotland Patient Support Group. This is a full recording of that meeting. The expert on hand were Dr. Catherine Bagot.

All Ireland ITP Support Group Meeting August 2021

All Ireland ITP Support Group Meeting August 2021 During the Covid19 pandemic all our ITP Patient Group meetings have taken place on Zoom. This is an edited recording of the All Ireland ITP Patient Meeting which took place on 3rd August 2021. The expert answering questions is Dr Gerard Crotty. For…

England and Wales ITP Support Group - July 2021 Meeting

England and Wales ITP Patient Meeting During the Covid19 pandemic all of our ITP Patient Group meetings have taken place on Zoom. The July 2021 ITP Patient Meeting covered all the groups in England and Wales. This is a full recording of that meeting. The expert at this meeting was Prof. Adrian…

First ever plasma appeal over shortfall in donors due to lack of awareness following 20 year gap  

First ever plasma appeal over shortfall in donors due to lack of awareness following 20 year gap NHS Blood and Transplant is today (Wednesday July 21) launching its first campaign for people to donate plasma for medicines. Donation only restarted in April after a gap of more than 20 years and few…

2021 ITP Christmas Card Collection

Yes, I know its only Summer but by popular demand our 2021 Christmas Card Collection is now available to purchase, each design comes in a pack of 10 cards, £3.50 per pack. All proceeds help the Association continue its work with ITP patients. Go to - Click here for the ITP Shop

ITP Patient Covid-19 Vaccine Survey - Spring 2021 – Initial Findings

ITP Patient Covid-19 Vaccine Survey - Updated Spring 2021 – Initial Findings (1) This paper reports on some initial findings from the ITP Support Association ITP Patient Covid-19 Vaccine Survey which was updated in February 2021. Did having the Covid-19 Vaccine have an effect on Platelet Counts?…

England and Wales April 2021 ITP Patient Meeting - Full Recording

England and Wales ITP Patient Meeting During the Covid19 pandemic all of our ITP Patient Group meetings have taken place on Zoom. The April 2021 ITP Patient Meeting covered all the groups in England and Wales. The main subject of discussion was Covid-19 Vaccine and Blood Clotting. This is a full…

Scotland April 2021 ITP Patient Meeting

Scotland ITP Patient Meeting April 2021 During the Covid19 pandemic all of our ITP Patient Group meetings have taken place on Zoom. The April 2021 ITP Patient Meeting covered the Scotland Patient Support Group. The main subjects of discussion varied from Paediatric ITP to the Covid-19 Vaccine and…

Covid-19 vaccines and blood clotting. Prof Adrian Newland 02/04/2021

Covid-19 vaccines and blood clotting. Prof Adrian Newland 02/04/2021 There has been much discussion in the media recently regarding the potential development of thrombosis (clots) post-vaccination and a lot of the debate has centred on the Oxford/Astra Zeneca vaccine, although studies world-wide…

Covid-19 vaccination. Assessment by Prof. Adrian Newland

We have also updated the answers to our most frequently asked questions (FAQs) regarding ITP and the Covid-19 vaccines. These can be downloaded here >>> There has been a steady stream of positive news regarding the trials and rollout of the various Covid-19 vaccines in recent weeks, this has also…

I’m not a bubble-wrap boy - storybook to help children understand ITP

I would like to thank Novartis for making this storybook about immune thrombocytopenia (ITP). The book is endorsed in the United Kingdom by the ITP Support Association. I’m not a bubble-wrap boy! can help children and adults alike to understand what it feels like to live with ITP and describes the…

All Ireland ITP Support Group Meeting - Recording February 2021

This meeting (All Ireland Support Group) was the 50th ITP Support Group meeting held by the ITP Support Association since we started these meetings in January 2019. We have come a long way since that first meeting held in a Church Hall in Devon, none of this would have been possible without the…

Rare Disease Day February 28th 2021 by Anthony Heard

Rare Disease Day February 28th 2021 by Anthony Heard On February 2nd I was delighted to join a special Zoom meeting to preview the Rare Disease Day 2021 campaign. It was truly inspiring. The event this year will be bigger than ever and has numerous opportunities for us all to get involved. Even by…

Practical guidance for the management of adults with Immune Thrombocytopenia during the COVID-19 pandemic Updated January 2021

Practical guidance for the management of adults with Immune Thrombocytopenia during the COVID-19 pandemic Updated January 2021 Pavord S, Thachil J, Hunt B, Murphy M, Lowe G, Laffan M, Makris M, Newland A, Provan D, Grainger J, Hill Q. This document aims to provide practical guidance for the…

ITP Patient Perception Survey Roundtable report 2020

Over the years the ITP Support Association has carried out many surveys covering the subject of ITP, this year we ran our Patient Perception Survey 2020, this was a follow up to a previous patient perception survey in 2017/18. With the Association establishing an ever growing range of local ITP…

The ITP Support Association - 25 Years in Pictures

The ITP Support Association - 25 Years in Pictures The ITP Support Association was founded in 1995 by Shirley Watson MBE, this video gives us a glimpse of the many people who have been involved with the organisation over the first 25 years. This video premiered at the opening of the ITP Support…

Introducing Jonny Mellor the New ITP Support Association Ambassador

Introducing Jonny Mellor the New ITP Support Association Ambassador We would like to introduce our new ITP Support Association Ambassador, Olympic hopeful Jonny Mellor, who recently won the British Championships at the #LondonMarathon running 2:10:38. His story is an inspiration for everyone who…

England and Wales ITP Support Meeting Recording January 2021

England and Wales ITP Patient Meeting During the Covid19 pandemic all of our ITP Patient Group meetings have taken place on Zoom. The January 2021 ITP Patient Meeting covered all the groups in England and Wales. This is a recording of that meeting. The experts on hand were Prof. Adrian Newland and…

Scotland ITP Patient Meeting 2021 Recording 21st January 2021

Scotland ITP Patient Meeting During the Covid19 pandemic all of our ITP Patient Group meetings have taken place on Zoom. This is a recording of the 21st January 2021 Scotland ITP Patient Meeting. The expert on hand was Dr Catherine Baggott from Glasgow Royal Infirmary.

EHA - European Affairs Committee Appointment

European Haematology Association (EHA) Appointment We are extremely pleased and proud to announce the appointment of the ITP Support Association Trustee Mr Derek Elston to the European Haematology Associations, European Affairs Committee as the second patient representative from the Patient…

Global Awareness Week - Patient Stories

We are celebrating Global Awareness Week (21st to 25th September 2020, with some fantastic Patient Stories, go to ITP Patient Stories If you would like your ITP story published email it to mervyn.morgan@itpsupport.org.uk

ITP Registries - September 2020 update

UK ITP Registries The ITP Support Association has been a proud supporter of the UK ITP Registries since their inception. In 2020 we continued this support with grants of £22,000 for the Adult ITP Registry at Barts Health NHS Trust and £22,000 for the Childhood ITP Registry at the Royal Manchester…

The Flu vaccine and ITP

The Flu vaccine and ITP. Please note that this general advice on the influenza vaccine has been written by one of the Association's medical advisors, Professor Adrian Newland CBE, but it does not replace any advice given to you by your consultant or GP who knows you and your ITP. The influenza…