ITP Support Association Convention 2018

Following last year’s well-received ITP Convention in London, several members approached us with a request that we should once again consider holding a future event in the North West of the country. Therefore, we are pleased to announce that our 2018 Convention will take place at Chester Race Course on Sat 27th October from 10.00 am to 5.00 pm.

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The June edition of the Platelet is now available to download from the members area of the website, if you have not yet joined the ITP Support Association click here.

The June Platelet is a bumper edition (32 pages) including all the usual favourites, latest fundraising heroes, updates from the ITP office, the American Perspective, plus a report on the recent patient day held in Cardiff and news about our ITP Patient Afternoon at the Platelet Mission in July.

To read this and previous editions of the Platelet go to the members area of the website.

 

Pauline Woods, raising money for ITP, in her own words

As someone with ITP, on a good day I might not feel anything at all, other days I'm covered in bruises then on bad days, I feel like someone has poured all the energy out of my body and I could literally sit down wherever I am (in the office, in the street), and sleep. I have also been asked, on more than one occasion, 

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Join us

What are the benefits of membership?
Membership of the ITP Support Association mailing list brings you:

The Platelet, our quarterly journal, access to our 'ITP Friends' counselling volunteers, further information on living with ITP, treatment and the latest research, through our numerous free booklets and factsheets covering items such as insurance and Schools.

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Last year many of you may recall that a group of rare disease stakeholders came together to form a Priority Setting Partnership (PSP) to find out what matters to patients, carers and clinicians in the field of Bleeding Disorders. Some people experience problems with bleeding throughout their lives as the result of an inherited disorder such as haemophilia or von Willebrand disease. Others may have long-term problems due to an acquired problem such as immune thrombocytopenia and finally some people may have experienced problems only after childbirth or surgery.  To this end the PSP launched a survey 12 months ago asking for people to consider which questions they think are the most important for researchers to be asking.

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Vacancy Book Keeper  / Treasurer

The ITP Support Association is seeking a Book Keeper / Treasurer whose duties will be to:

  • monitor the financial administration of the charity and report to the Chief Executive.
  • oversee the charity’s financial risk-management process;
  • act as a countersignatory on cheques and online banking;
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A new data protection law (GDPR) has now been introduced in the United Kingdom. Therefore we have published a new Privacy Notice to show how we use and protect your information. When joining or renewing your membership of the ITP Support Association online there are additional options to chose regarding how we contact you within your membership profile.

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ITP Pocket Log

We are pleased to announce that the Android version of the app is live! It is available to download – free of charge – from Google Play, use the search term “ITP symptom tracker”.

The IOS version has been available for some time from the Apple App Store. 

Everyone involved in the project would like to thank those who sent in ideas for the app after the outline of the project was shared at the ITP Convention last year.

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The 20th ITP Convention 2017

Royal Society of Medicine, London.

The 13th is considered by many to be an unlucky number so I am sure, some had misgivings about the date chosen for the annual convention for 2017. They need not have worried.

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About the ITP Support Association

Charity Registration No. 1064480

The ITP Support Association is a UK registered charity which aims to promote and improve the general welfare of patients, and the families of patients, with Immune Thrombocytopenia (Idiopathic Thrombocytopenic Purpura) by providing:

Patient/parental/antenatal information and support.

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What does ITP stand for?

Immune Thrombocytopenia (An autoimmune disorder (Immune) causing a shortage of small cells in the blood known as platelets (Thrombocytopenic) Formerly known as Idiopathic (of unknown origin) Thrombocytopenic Purpura (bruising) .

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Info for Patients

What is ITP
Immune thrombocytopenia (formerly known as idiopathic thrombocytopenic purpura) is a medical term for an autoimmune disorder (immune) causing a shortage of platelets (thrombocytopenia) and bruising (purpura).

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