ITP Support Association Patient Perception Survey 2020

ITP Support Association Patient Perception Survey 2020 Over the years the ITP Support Association has carried out many surveys covering the subject of Immune thrombocytopenia (ITP). Many of you would have been aware that the association has now established a growing network of Local ITP Groups…

ITP Patient Day - 28th February - Hammersmith Hospital

Immune Thrombocytopenia (ITP) Patient Day ITP patients and carers welcome Friday 28th February 2020, from 2:30pm to 5:30pm Venue: Hammersmith Hospital, W12 Conferences, Artillery Lane , 150 Du Cane Road, London, W12 0HS

New ITP Patient Resources from Novartis UK

Novartis UK have published an excellent page on their website containing some great #ITPPatientResources, a series of videos, details of the ITP Pocket Log and advice about the ITP Emotional Burden. The videos and ITP Pocket Log were developed in collaboration with the @ITPSupportAssoc To view the…

Maesteg South Wales Local ITP Support Group

First meeting of the Maesteg South Wales Local ITP Support Group Monday 20th Jan saw the first meeting of the new Maesteg South Wales Local ITP Support Group, a lovely venue with some stunning scenery of the valleys. many thanks to Wendy Tucker for organising the venue. The next meeting in Wales…

First Meeting of the Broomfield Hospital ITP Support Group

First Meeting of the Broomfield Hospital ITP Support Group A huge thankyou to Dr Pavel P Kotoucek and his team at the Broomfield Hospital, Chelmsford for making all who attended the first meeting of their ITP Local Support Group welcome. We would also like to thank friend of the ITP Support…

Worcester ITP Support Group - First Meeting

Worcester ITP Support Group - First Meeting The first meeting of the new Worcester ITP Support Group took place on Fri 10th Jan. A big thank you to Jo Marlow. The next Worcester meeting will be in April (Date TBC shortly) Also thanks to Waitrose for making their Community Room available for the…

Press Release - Grifols to launch TAVLESSE® in Europe and Turkey

Grifols to launch TAVLESSE® in Europe and Turkey to continue reinforcing its commercial strategy and commitment to patients European Commission has approved TAVLESSE® (fostamatinib) for the treatment of chronic immune thrombocytopenia (ITP) in adult patients who are refractory to other treatments.…

INTERNATIONAL UPDATE for 2019

INTERNATIONAL UPDATE for 2019 By Derek Elston, Trustee, ITP Support Association The last twelve months have been extremely busy with the association being involved in representing ITP patients not only within the United Kingdom, but also within Europe and beyond. Whilst much of the involvement has…

ITP AWARENESS - Looking forward to RARE DISEASE DAY 2020

ITP AWARENESS - Looking forward to RARE DISEASE DAY 2020 By Anthony Heard The annual ITP September Awareness Campaign has now come to a close after a wonderful purple tinged month. With contributions from all corners of the globe we have once again drawn attention to ITP in spectacular fashion. A…

Update on the UK Adult ITP Registry

Update on the UK Adult ITP Registry by Haroon Miah, Research Coordinator / Data Manager at the Royal London Hospital In the last year we have added 19 new sites to the 74 hospitals that already report their new ITP patients to the Registry. This is 69% of the acute non-specialist Trusts in the UK…