The ITP Support Association

Making the right choices in ITP management and care - Translated versions

Making the right choices in ITP management and care - Translated versions Now available in various European languages Die richtigen Entscheidungen für Behandlung und Versorgung bei ITP treffen Making the right choices in ITP management and care bit.ly/3EHKime bit.ly/3lNsdKe Faire les bons choix en…

ITP Group Meetings - New Dates Added - Meeting Schedule

ITP Support Association Group Meetings - New Dates Added England and Wales ITP Group Meeting Next Meeting: 9th June 2022 at 7pm This will be an online Zoom Meeting - Click here to register >>> Scotland ITP Group Meeting Next Meeting: 15th June 2022 at 7pm This will be an online Zoom Meeting - Click…

Global I-WISh Survey Shines a Light on the True Burden of Life with ITP

Global I-WISh Survey Shines a Light on the True Burden of Life with ITP One of the largest surveys ever conducted in immune thrombocytopenia (ITP), the ITP World Impact Survey (I-WISh) collaboration, revealed the extensive impact this rare blood disorder can have on people’s quality of life. The…

The Platelet Journal - March 2022 edition now available

The March 2022 edition of the ITP Support Associations Platelet Journal is now available to download, this edition includes details of our 2022 ITP Support Association Convention plus a great article from our colleague Danielle Boyle from ITP Australia and lots more. Printed copies for those who…

Covid 19 Vaccine and Boosters Q&A Meeting - Video

Covid 19 Vaccine and Boosters Q&A Meeting 7pm Thursday 17th February 2022 This is the recording of the ITP Support Group Meeting covering Covid-19 Vaccines and Boosters. The meeting took place on Thursday 17th February 2022 with patient questions being put to Prof. Adrian Newland Chair of the…

All Ireland ITP Support Group Meeting 10th January 2022

During the Covid19 pandemic all of our ITP Patient Group meetings have taken place on Zoom. This is a recording of the All Ireland ITP Patient Meeting was held on 10th January 2022. For details of further Patient meetings please visit our website at www.itpsupport.org.uk. You can download a copy of…

Scotland ITP Support Group 14th December 2021

During the Covid19 pandemic all of our ITP Patient Group meetings have taken place on Zoom. This is a recording of the Scotland ITP Patient Meeting was held on 14th December 2021. The expert was Dr Catherine Bagot. For details of further Patient meetings please visit our website at…

Covid-19 and the Omicron variant – an update by Professor Adrian Newland

Covid-19 and the Omicron variant – an update The Omicron variant of the SARS-CoV-2 virus, which causes Covid-19 infection, was first detected in early November in South Africa and has now been identified world-wide. Although the numbers detected in the UK remain small they are rising fast, with…

Covid Vaccine and Children (12 to 18s) By Dr John Grainger

Covid Vaccine and Children The guidance published by the UK ITP Forum is equally applicable to children as adults and can be found via this link – UK ITP Forum Vaccine Guidance. In brief we are strongly recommending COVID vaccination for children with ITP who are currently eligible. Platelet…

A Study to Evaluate the Efficacy and Safety of Efgartigimod PH20 Subcutaneous in Adult Patients with Primary Immune Thrombocytopenia (ADVANCE SC+)

A Study to Evaluate the Efficacy and Safety of Efgartigimod PH20 Subcutaneous in Adult Patients with Primary Immune Thrombocytopenia (ADVANCE SC+) argenx BVBA is conducting a phase 3, multicentre, randomized, double-blinded, placebo-controlled trial to evaluate the efficacy and safety of…

ITP Support Association switches to JustGiving.com

ITP Support Association switches to JustGiving.com ITP Support Association switches to JustGiving.com as its default fundraising / donation partner following the announcement by Virgin Money Giving that they would be closing their site from the 30th November and will no longer be accepting…

ITP Patient Covid-19 Updated Vaccine Survey 2021

ITP Patient Covid-19 Vaccine Survey - 2021 Our Covid-19 Vaccine Survey is still open, we have added some additional questions covering the Booster vaccine jab. We would also welcome any youngsters with ITP (18’s and below) who have had their vaccine to complete the survey. So far we have had over…

England and Wales ITP Support Group Meeting 25th November 2021

This is the recording of the England and Wales ITP Support Group Meeting that took place on Thursday 25th November with Prof. Adrian Newland Chair of the ITPSA, Mervyn Morgan CEO of the ITPSA, Rhonda Anderson Senior Patient Mentor and Board Members Derek Elston and Anthony Heard. You can download a…

Making the right choices in ITP management and care

'Making the right choices in ITP management and care' – A shared decision-making toolkit for patients. To download the English Langauge version click this link: Making the right choices in ITP management and care To download versions in French, German, Italian, Spanish and Portuguese click this…

UK Adult and PREGNANCY ITP Registry – Updates – September 2021

UK Adult ITP Registry – Update – September 2021 It has been another busy year for the UK adult ITP registry. The COVID-19 pandemic and lockdown restrictions meant that many of our ITP patients, clinicians and staff had to restrict their movement and stay or work from home throughout 2020 and into…

PROJECT LIVING WITH IMMUNE THROMBOCYTOPENIA (ITP) - Looking for patients

PROJECT LIVING WITH IMMUNE THROMBOCYTOPENIA (ITP) A Pharmaceutical client is looking for patients who have been diagnosed with immune thrombocytopenia (ITP) and would be willing to take part in a 60-minute 7-day online diary and a 60 minute interview on Microsoft teams. The purpose of the study is…

Living with ITP - common questions and concerns

Join us as we celebrate Sport Purple for Platelets Day and Global ITP Awareness Week with the presentation of the ITP Insights webinar, “Living with ITP: Common Questions and Concerns,” on Friday, 24th September from 7:00 PM (BST). This webinar will include a panel discussion of ITP experts,…

“I wouldn’t have my children without plasma donors” says Manchester mum for Global ITP Awareness Week

“I wouldn’t have my children without plasma donors” says Manchester mum for Global ITP Awareness Week A MUM is calling for more people to donate plasma for Global ITP Awareness Week (September 20 to 24) after donors enabled her to have a family. Danielle Morley, 37, of Radcliffe, developed the…

Usability Study - Can you help?

In the context of the development of a novel self-injection device for the treatment of ITP, a global biopharmaceutical company is seeking patients diagnosed with Immune Thrombocytopenic Purpura (ITP) to be recruited for a simulated use (usability) study. The usability study will consist of…

Scotland ITP Patient Meeting August 2021

Scotland ITP Patient Meeting August 2021 During the Covid19 pandemic all of our ITP Patient Group meetings have taken place on Zoom. The August 2021 ITP Patient Meeting covered the Scotland Patient Support Group. This is a full recording of that meeting. The expert on hand were Dr. Catherine Bagot.

All Ireland ITP Support Group Meeting August 2021

All Ireland ITP Support Group Meeting August 2021 During the Covid19 pandemic all our ITP Patient Group meetings have taken place on Zoom. This is an edited recording of the All Ireland ITP Patient Meeting which took place on 3rd August 2021. The expert answering questions is Dr Gerard Crotty. For…

England and Wales ITP Support Group - July 2021 Meeting

England and Wales ITP Patient Meeting During the Covid19 pandemic all of our ITP Patient Group meetings have taken place on Zoom. The July 2021 ITP Patient Meeting covered all the groups in England and Wales. This is a full recording of that meeting. The expert at this meeting was Prof. Adrian…

First ever plasma appeal over shortfall in donors due to lack of awareness following 20 year gap  

First ever plasma appeal over shortfall in donors due to lack of awareness following 20 year gap NHS Blood and Transplant is today (Wednesday July 21) launching its first campaign for people to donate plasma for medicines. Donation only restarted in April after a gap of more than 20 years and few…

ITP Patient Covid-19 Vaccine Survey - Spring 2021 – Initial Findings

ITP Patient Covid-19 Vaccine Survey - Updated Spring 2021 – Initial Findings (1) This paper reports on some initial findings from the ITP Support Association ITP Patient Covid-19 Vaccine Survey which was updated in February 2021. Did having the Covid-19 Vaccine have an effect on Platelet Counts?…

England and Wales April 2021 ITP Patient Meeting - Full Recording

England and Wales ITP Patient Meeting During the Covid19 pandemic all of our ITP Patient Group meetings have taken place on Zoom. The April 2021 ITP Patient Meeting covered all the groups in England and Wales. The main subject of discussion was Covid-19 Vaccine and Blood Clotting. This is a full…