I would like to thank Novartis for making this storybook about immune thrombocytopenia (ITP). The book is endorsed in the United Kingdom by the ITP Support Association. I’m not a bubble-wrap boy! can help children and adults alike to understand what it feels like to live with ITP and describes the…

ITP Patient Covid-19 Vaccine Survey - Spring 2021 With the Covid-19 vaccine rollout now gaining momentum in many countries and with many patients having now received or about to receive their second dose of the Covid-19 vaccine, we have adapted our original survey to encompass suggestions received…

Rare Disease Day February 28th 2021 For Rare Disease Day 2021 we have published several more Patient Stories, go to Latest Patient Stories Read Dale's story, Hi, I was diagnosed about 16 years ago when I was 40 but probably had it quite a long time before that, I just never bothered going to see…

This meeting (All Ireland Support Group) was the 50th ITP Support Group meeting held by the ITP Support Association since we started these meetings in January 2019. We have come a long way since that first meeting held in a Church Hall in Devon, none of this would have been possible without the…

Rare Disease Day February 28th 2021 by Anthony Heard On February 2nd I was delighted to join a special Zoom meeting to preview the Rare Disease Day 2021 campaign. It was truly inspiring. The event this year will be bigger than ever and has numerous opportunities for us all to get involved. Even by…

Over the years the ITP Support Association has carried out many surveys covering the subject of ITP, this year we ran our Patient Perception Survey 2020, this was a follow up to a previous patient perception survey in 2017/18. With the Association establishing an ever growing range of local ITP…

The December 2020 edition of the Platelet is now available to download, due to the Covid-19 pandemic and the Christmas Post printed copies may take a little longer than normal to be produced and despatched, therefore we will be making this edition free to download for the next few weeks. Enjoy some…

The ITP Support Association - 25 Years in Pictures The ITP Support Association was founded in 1995 by Shirley Watson MBE, this video gives us a glimpse of the many people who have been involved with the organisation over the first 25 years. This video premiered at the opening of the ITP Support…

Introducing Jonny Mellor the New ITP Support Association Ambassador We would like to introduce our new ITP Support Association Ambassador, Olympic hopeful Jonny Mellor, who recently won the British Championships at the #LondonMarathon running 2:10:38. His story is an inspiration for everyone who…

England and Wales ITP Patient Meeting During the Covid19 pandemic all of our ITP Patient Group meetings have taken place on Zoom. The January 2021 ITP Patient Meeting covered all the groups in England and Wales. This is a recording of that meeting. The experts on hand were Prof. Adrian Newland and…

Scotland ITP Patient Meeting During the Covid19 pandemic all of our ITP Patient Group meetings have taken place on Zoom. This is a recording of the 21st January 2021 Scotland ITP Patient Meeting. The expert on hand was Dr Catherine Baggott from Glasgow Royal Infirmary.

European Haematology Association (EHA) Appointment We are extremely pleased and proud to announce the appointment of the ITP Support Association Trustee Mr Derek Elston to the European Haematology Associations, European Affairs Committee as the second patient representative from the Patient…

We are celebrating Global Awareness Week (21st to 25th September 2020, with some fantastic Patient Stories, go to ITP Patient Stories If you would like your ITP story published email it to mervyn.morgan@itpsupport.org.uk

The TRAPeze (Thrombopoietin Receptor Agonist Patient experience) survey About the survey We are pleased to announce the launch of a new survey, the TRAPeze study is about life with immune thrombocytopenia (ITP). We would like to understand how ITP affects your daily life and what treatments and…

UK ITP Registries The ITP Support Association has been a proud supporter of the UK ITP Registries since their inception. In 2020 we continued this support with grants of £22,000 for the Adult ITP Registry at Barts Health NHS Trust and £22,000 for the Childhood ITP Registry at the Royal Manchester…

The Flu vaccine and ITP. Please note that this general advice on the influenza vaccine has been written by one of the Association's medical advisors, Professor Adrian Newland CBE, but it does not replace any advice given to you by your consultant or GP who knows you and your ITP. The influenza…

International ITP Alliance: Updates and upcoming events Our good friend, Nancy Potthast, Director of Marketing at the Platelet Disorder Support Association in the United States of America has produced this update for globalITP.org which is the website for the ITP International Alliance. First and…

Horses For Courses by Anthony Heard Many regular readers of my ITP blog will know that I have always been an advocate for the Future Learn series of courses available online in a wide variety of subjects. The Future Learn programme is 100% online and you can study courses provided by world-class…

Is this the New Normal? by Rhonda Anderson When you read this, we will be in official Autumn. You will have heard the national sigh of relief that children have gone back to school, and the groan of anguish that a vaccine will probably not be ready until 2021. It seems unbelievable that we are…

Before the Covid-19 lockdown Kidderminster Harriers Under 10’s organised a Parents v Players Charity game to raise money for the ITP Support Association. A member of the team, George, has a sister who suffers with ITP, so the team wanted to come together to raise some money and promote awareness.

2.6 Challenge - The Hare Family raise £245 on a treadmill As part of the 2.6 Challenge Amanda, Will, Ellé, Ben & Delphi covered the distance of the London marathon on their home treadmill running and walking (for little legs and muscles) 26.2 miles to help support the ITP Support Association,…

Virgin Money Giving >>> The ITP Support Association are pleased to announce that they have joined the fundraising and donation platform #VirginMoneyGiving, this platform is more widely recognised than our previous fundraising partner 'Wonderful' which is due to cease operations at the end of…

In these days of Social Isolation as a result of the Covid-19 emergency many people are understandably feeling stressed and under pressure due to the uncertainty of the current situation. One of the Associations Patient Mentors recently produced an excellent article which was published in the…

ITP Support Association Patient Perception Survey 2020 Over the years the ITP Support Association has carried out many surveys covering the subject of Immune thrombocytopenia (ITP). Many of you would have been aware that the association has now established a growing network of Local ITP Groups…

Scotland ITP Group show their support for Rare Disease Day 2020 The first Scotland ITP Group meeting of the 2020 took place in Edinburgh recently and the group showed their support for Rare Disease Day 2020. A big thank you to group organiser Sue Hussin for an excellent meeting of the group at the…