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The UK ITP Forum have updated their information for patients with ITP regarding coronavirus…
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All-Ireland ITP Patient Meeting - 12th November 2020

All-Ireland ITP Patient Meeting The ITP Support Association is pleased to announce that it will be holding an All-Ireland ITP Patient Meeting on Thursday 12th November at 7pm using the Zoom Video conferencing system. we will have the expertise of top haematologists from Ireland and the UK taking…
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Global Awareness Week - Patient Stories

We are celebrating Global Awareness Week (21st to 25th September 2020, with some fantastic Patient Stories, go to ITP Patient Stories If you would like your ITP story published email it to mervyn.morgan@itpsupport.org.uk

The TRAPeze (Thrombopoietin Receptor Agonist Patient experience) survey

The TRAPeze (Thrombopoietin Receptor Agonist Patient experience) survey About the survey We are pleased to announce the launch of a new survey, the TRAPeze study is about life with immune thrombocytopenia (ITP). We would like to understand how ITP affects your daily life and what treatments and…

ITP Registries - September 2020 update

UK ITP Registries The ITP Support Association has been a proud supporter of the UK ITP Registries since their inception. In 2020 we continued this support with grants of £22,000 for the Adult ITP Registry at Barts Health NHS Trust and £22,000 for the Childhood ITP Registry at the Royal Manchester…

The latest edition of the Platelet (September 2020 edition) is now available

The latest edition of the Platelet (September 2020 edition) is now available to download, due to the Covid-19 pandemic printed copies may take a little longer than normal to be produced and despatched, therefore we will be making this edition free to download for the next few weeks. Enjoy some…
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The Flu vaccine and ITP

The Flu vaccine and ITP. Please note that this general advice on the influenza vaccine has been written by one of the Association's medical advisors, Professor Adrian Newland CBE, but it does not replace any advice given to you by your consultant or GP who knows you and your ITP. The influenza…

International ITP Alliance: Updates and upcoming events

International ITP Alliance: Updates and upcoming events Our good friend, Nancy Potthast, Director of Marketing at the Platelet Disorder Support Association in the United States of America has produced this update for globalITP.org which is the website for the ITP International Alliance. First and…

Horses For Courses by Anthony Heard

Horses For Courses by Anthony Heard Many regular readers of my ITP blog will know that I have always been an advocate for the Future Learn series of courses available online in a wide variety of subjects. The Future Learn programme is 100% online and you can study courses provided by world-class…

Is this the New Normal? by Rhonda Anderson

Is this the New Normal? by Rhonda Anderson When you read this, we will be in official Autumn. You will have heard the national sigh of relief that children have gone back to school, and the groan of anguish that a vaccine will probably not be ready until 2021. It seems unbelievable that we are…

Cinderella study - Bleeding Disorder Survey

The ITP Support Association are proud to support Haemnet and the Cinderella Study survey! If you're a woman and have been affected by a #bleedingdisorder, please do get involved and complete this survey. Link https://haemnet.typeform.com/to/uWufTI The following is the text published by Haemnet…

A big shout out to Kidderminster Harriers Under 10s

Before the Covid-19 lockdown Kidderminster Harriers Under 10’s organised a Parents v Players Charity game to raise money for the ITP Support Association. A member of the team, George, has a sister who suffers with ITP, so the team wanted to come together to raise some money and promote awareness.

We are now publishing some of the excellent articles received from ITP Patients about their experiences with the condition.

If you have an ITP Story that you would like to share please contact us by email Contact us. We can share on this website and in our quarterly journal, The Platelet.