Ross Olney raised £676 from a 100km cycle ride with the help of Lea Barn Stables in Wexham, followed by a cake and coffee sale. Ross told us that this was the first time he had organised such an event, and the ITP Support Association was his chosen charity as we had helped his parents through a tough time in 2016 when his father was diagnosed with ITP. Sadly, due to further complications, his Dad passed away at the end of November last year.
What are the benefits of membership? Membership of the ITP Support Association mailing list brings you:
The Platelet, our quarterly journal, access to our 'ITP Friends' counselling volunteers, further information on living with ITP, treatment and the latest research, through our numerous free booklets and factsheets covering items such as insurance and Schools, a free ICH alert card in case of a bleeding emergency, access (through the Association) to our medical advisors for difficult conditions, concession ticket price for the annual ITP Support Association Conventions featuring visiting ITP specialists, and the opportunity to voice your opinion in occasional optional surveys to gather data on ITP (some from pharma agencies offer payment to participants).
The ITP Support Association is a UK registered charity which aims to promote and improve the general welfare of patients, and the families of patients, with Immune Thrombocytopenia (Idiopathic Thrombocytopenic Purpura) by providing:Patient/parental/antenatal information and support
Immune Thrombocytopenia (An autoimmune disorder (Immune) causing a shortage of small cells in the blood known as platelets (Thrombocytopenic) Formerly known as Idiopathic (of unknown origin) Thrombocytopenic Purpura (bruising) .
What is ITP Immune thrombocytopenia (formerly known as idiopathic thrombocytopenic purpura) is a medical term for an autoimmune disorder (immune) causing a shortage of platelets (thrombocytopenia) and bruising (purpura).
ITP Research funded or supported by the Association
There is no state funding for ITP research, nor does The ITP Support Association receive any government funding, so it is entirely due to the generous donations and fundraising efforts of people with an interest in ITP that such valuable and much-needed research, as listed below, has been carried out.
New projects yet to start
In 2016 The Association agreed to fund the following projects: