First Meeting of the West Sussex ITP Support Group

The first meeting of the West Sussex ITP Support Group took place recently in Chichester, details of the next meeting are available at Local Support Group Meetings

The ITP Support Association are pleased to announce that due to the impending closure of BT MyDonate (end June 2019) we will be using the Wonderful Organisation for our supporters to make donations at https://www.wonderful.org/charity/theitpsupportassociation

First Meeting of the Nottinghamshire ITP Support Group

The first meeting of the Nottinghamshire ITP Support Group took place recently in Chichester, details of the next meeting are available at Local Support Group Meetings

First Meeting of the North West ITP Support Group

The first meeting of the North West ITP Support Group took place recently in Alderley Edge, details of the next meeting are available at Local Support Group Meetings

We are pleased to announce that the ITP Patient Day held in Dublin on Saturday 13th Aptil in association with Novartis Ireland was a fantastic success. We will be publishing a report from the day in due course. 

In addition we must also say a big thank you to our speakers: 

First Local ITP Group Meeting in Devon

We recently held the first Local ITP Group Meeting of the year. The meeting was held in the Ancient Stannary Town of Ashburton in the heart of the South Devon countryside, close to the edge of Dartmoor. We must say a big thankyou to member of the ITP Support Association, Sally Rhodes, who stepped forward and volunteered to organise a suitable venue for the meeting.

To go to clinicaltrials.gov click here

ITP Convention 2018 - Roundup

We recently held our Annual ITP Patients Convention, this time, following requests from members we took the Convention to the beautiful City of Chester and its historic racecourse in the North West of the Country.

Putting people with inherited and acquired bleeding disorders at the heart of multidisciplinary research. The official Top 10 research priorities:

Derek Elston, trustee of the ITP Support Association, tells PharmaTimes about his experiences of being diagnosed and living with the rare bleeding disorder

How were you diagnosed with idiopathic thrombocytopenic purpura and what were your symptoms?

I was first diagnosed in 1993 with ITP after working in the Far East for 14 months. At the end I was fairly shattered both with the intensity of the work and commuting regularly. After about four weeks, I decided to visit the doctor. He took a sample of blood.

Pauline Woods, raising money for ITP, in her own words

As someone with ITP, on a good day I might not feel anything at all, other days I'm covered in bruises then on bad days, I feel like someone has poured all the energy out of my body and I could literally sit down wherever I am (in the office, in the street), and sleep. I have also been asked, on more than one occasion,