ITP Patient Perception Survey 2022 Over the years the ITP Support Association has carried out many surveys covering the subject of Immune thrombocytopenia (ITP). Many of you would have been aware that the association has now established a growing network of Local ITP Groups around the UK. Much of…

The UK & Ireland ITP Support Association Academic Scholarship Programme The ITPSA has been providing ITP patients and family members with reliable information and support through its many channels (website and social media), publications, regular patient meetings and annual conferences. During…

This is a recording of the All-Ireland ITP Patient Meeting was held on 5th July 2022. The Health Care Professional answering questions was ITP Support Association Medical Advisor Dr Gerard Crotty. Also taking part were ITPSA Senior Patient Mentor Mrs Rhonda Anderson, ITPSA Vice Chair Mr Derek…

The June 2022 edition of the ITP Support Associations Platelet Journal is now available to download, this edition includes a report covering our 2022 ITP Support Association Convention and the Fatigue Symposium plus a great article from our colleague Ruben De Francesco from ITP Argentina and lots…

This is the recording of the England and Wales ITP Support Group Meeting that took place on Thursday 9th June 2022 with Dr. Alice Hart, from Imperial College NHS Trust, Mervyn Morgan CEO of the ITPSA, Rhonda Anderson Senior Patient Mentor, Karen Smith Patient Mentor and Board Member Colin Williams.…

Making the right choices in ITP management and care - Translated versions Now available in various European languages Die richtigen Entscheidungen für Behandlung und Versorgung bei ITP treffen Making the right choices in ITP management and care bit.ly/3EHKime bit.ly/3lNsdKe Faire les bons choix en…

Global I-WISh Survey Shines a Light on the True Burden of Life with ITP One of the largest surveys ever conducted in immune thrombocytopenia (ITP), the ITP World Impact Survey (I-WISh) collaboration, revealed the extensive impact this rare blood disorder can have on people’s quality of life. The…

The March 2022 edition of the ITP Support Associations Platelet Journal is now available to download, this edition includes details of our 2022 ITP Support Association Convention plus a great article from our colleague Danielle Boyle from ITP Australia and lots more. Printed copies for those who…

Covid 19 Vaccine and Boosters Q&A Meeting 7pm Thursday 17th February 2022 This is the recording of the ITP Support Group Meeting covering Covid-19 Vaccines and Boosters. The meeting took place on Thursday 17th February 2022 with patient questions being put to Prof. Adrian Newland Chair of the…

During the Covid19 pandemic all of our ITP Patient Group meetings have taken place on Zoom. This is a recording of the All Ireland ITP Patient Meeting was held on 10th January 2022. For details of further Patient meetings please visit our website at www.itpsupport.org.uk. You can download a copy of…

During the Covid19 pandemic all of our ITP Patient Group meetings have taken place on Zoom. This is a recording of the Scotland ITP Patient Meeting was held on 14th December 2021. The expert was Dr Catherine Bagot. For details of further Patient meetings please visit our website at…

Covid-19 and the Omicron variant – an update The Omicron variant of the SARS-CoV-2 virus, which causes Covid-19 infection, was first detected in early November in South Africa and has now been identified world-wide. Although the numbers detected in the UK remain small they are rising fast, with…

Covid Vaccine and Children The guidance published by the UK ITP Forum is equally applicable to children as adults and can be found via this link – UK ITP Forum Vaccine Guidance. In brief we are strongly recommending COVID vaccination for children with ITP who are currently eligible. Platelet…

A Study to Evaluate the Efficacy and Safety of Efgartigimod PH20 Subcutaneous in Adult Patients with Primary Immune Thrombocytopenia (ADVANCE SC+) argenx BVBA is conducting a phase 3, multicentre, randomized, double-blinded, placebo-controlled trial to evaluate the efficacy and safety of…

ITP Patient Covid-19 Vaccine Survey - 2021 Our Covid-19 Vaccine Survey is still open, we have added some additional questions covering the Booster vaccine jab. We would also welcome any youngsters with ITP (18’s and below) who have had their vaccine to complete the survey. So far we have had over…

This is the recording of the England and Wales ITP Support Group Meeting that took place on Thursday 25th November with Prof. Adrian Newland Chair of the ITPSA, Mervyn Morgan CEO of the ITPSA, Rhonda Anderson Senior Patient Mentor and Board Members Derek Elston and Anthony Heard. You can download a…

'Making the right choices in ITP management and care' – A shared decision-making toolkit for patients. To download the English Langauge version click this link: Making the right choices in ITP management and care To download versions in French, German, Italian, Spanish and Portuguese click this…

UK Adult ITP Registry – Update – September 2021 It has been another busy year for the UK adult ITP registry. The COVID-19 pandemic and lockdown restrictions meant that many of our ITP patients, clinicians and staff had to restrict their movement and stay or work from home throughout 2020 and into…

PROJECT LIVING WITH IMMUNE THROMBOCYTOPENIA (ITP) A Pharmaceutical client is looking for patients who have been diagnosed with immune thrombocytopenia (ITP) and would be willing to take part in a 60-minute 7-day online diary and a 60 minute interview on Microsoft teams. The purpose of the study is…

Join us as we celebrate Sport Purple for Platelets Day and Global ITP Awareness Week with the presentation of the ITP Insights webinar, “Living with ITP: Common Questions and Concerns,” on Friday, 24th September from 7:00 PM (BST). This webinar will include a panel discussion of ITP experts,…

“I wouldn’t have my children without plasma donors” says Manchester mum for Global ITP Awareness Week A MUM is calling for more people to donate plasma for Global ITP Awareness Week (September 20 to 24) after donors enabled her to have a family. Danielle Morley, 37, of Radcliffe, developed the…

In the context of the development of a novel self-injection device for the treatment of ITP, a global biopharmaceutical company is seeking patients diagnosed with Immune Thrombocytopenic Purpura (ITP) to be recruited for a simulated use (usability) study. The usability study will consist of…