The ITP Support Association

Practical guidance for the management of adults with Immune Thrombocytopenia during…

Practical guidance for the management of adults with Immune Thrombocytopenia during the COVID‐19…

Global ITP Awareness Week Scheduled for Week of 21st September.

Global ITP Awareness Week Scheduled for Week of 21st September. Immune Thrombocytopenia (ITP) is the most common autoimmune bleeding disorder affecting 10 times as many people as hemophilia, yet is unknown to most. Beginning 21st September and ending on 25th September (Sport Purple for Platelets…

Update: splenectomy have been added to the COVID-19 shielding list

Update: splenectomy have been added to the COVID-19 shielding list Update: A number of Patients have contact us in the past 24 hours to says that splenectomy has now been added to the COVID-19 high risk shielding list and they have received a letter from the NHS. During a webinar on 24 April, NHS…

Webinar: ITP and Covid-19 Q&A - 16th April - Full Recording

Webinar: ITP and Covid-19 Q&A - 16th April - Full Recording The United Kingdom ITP Support Association has a proud record spanning 25 years, providing trusted resources and advice for those living life with ITP. We are acutely aware from the many emails, letters and telephone calls we have received…

2.6 Challenge - The Hare Family raise £245 on a treadmill

2.6 Challenge - The Hare Family raise £245 on a treadmill As part of the 2.6 Challenge Amanda, Will, Ellé, Ben & Delphi covered the distance of the London marathon on their home treadmill running and walking (for little legs and muscles) 26.2 miles to help support the ITP Support Association,…

Coronavirus (Covid-19) - Updated Information Statement from the ITP Forum & ITP Support Association - 23rd March 2020

Coronavirus (Covid-19) - Updated Information Statement from the ITP Forum & ITP Support Association - 23rd March 2020 Information for adult patients with immune thrombocytopenia in the setting of COVID-19 pandemic (Please note this equally applies to children) Immune thrombocytopenia (ITP) is not…

ITP Support Association - UK Convention - London 2020 - Change of Date

UK ITP Convention #ITPLondon2020 Following a meeting of the UK ITP Support Association Board, we have made the decision to postpone our UK ITP Convention which was due to take place in May. The event will now take place on Saturday 10th October (same times, same venue), Royal College of…

New fundraising partner - Viginmoneygiving

Virgin Money Giving >>> The ITP Support Association are pleased to announce that they have joined the fundraising and donation platform #VirginMoneyGiving, this platform is more widely recognised than our previous fundraising partner 'Wonderful' which is due to cease operations at the end of…

Dealing with Difficult Emotions after ITP Diagnosis

In these days of Social Isolation as a result of the Covid-19 emergency many people are understandably feeling stressed and under pressure due to the uncertainty of the current situation. One of the Associations Patient Mentors recently produced an excellent article which was published in the…

The March 2020 edition of the Platelet journal is available online

The March 2020 edition of the Platelet journal is available online The March 2020 edition of the Platelet Journal is now available to download from the members area of the website, if you have not yet joined the ITP Support Association click here. The print version is currently at the printers and…

ITP Support Association Patient Perception Survey 2020

ITP Support Association Patient Perception Survey 2020 Over the years the ITP Support Association has carried out many surveys covering the subject of Immune thrombocytopenia (ITP). Many of you would have been aware that the association has now established a growing network of Local ITP Groups…

Coronavirus (Covid-19) Latest UK and Ireland Governments, WHO, NHS guidance and other trusted sources of info.

COVID-19 is a new illness that can affect your lungs and airways. It's caused by a virus called coronavirus. Below are links to various NHS and UK Government pages that contact the latest advice on coronavirus. Get coronavirus (COVID-19) advice Find out what to do if: you think you have symptoms…

Scotland ITP Group show their support for Rare Disease Day 2020

Scotland ITP Group show their support for Rare Disease Day 2020 The first Scotland ITP Group meeting of the 2020 took place in Edinburgh recently and the group showed their support for Rare Disease Day 2020. A big thank you to group organiser Sue Hussin for an excellent meeting of the group at the…

We are now publishing some of the excellent articles received from ITP Patients about their experiences with the condition.

If you have an ITP Story that you would like to share please contact us by email Contact us. We can share on this website and in our quarterly journal, The Platelet.