CRC edited 1

 ITP Support Association Convention 2018

Following last year’s well-received ITP Convention in London, several members approached us with a request that we should once again consider holding a future event in the North West of the country. Therefore, we are pleased to announce that our 2018 Convention will take place at Chester Race Course on Sat 27th October from 10.00 am to 5.00 pm.

Read more ...

The September edition of the Platelet is now available to download from the members area of the website, if you have not yet joined the ITP Support Association click here.

Read more ...

Christmas Cards now available in the ITP online shop, to browse whats on offer click ITP Shop

Derek Elston, trustee of the ITP Support Association, tells PharmaTimes about his experiences of being diagnosed and living with the rare bleeding disorder

How were you diagnosed with idiopathic thrombocytopenic purpura and what were your symptoms?

I was first diagnosed in 1993 with ITP after working in the Far East for 14 months. At the end I was fairly shattered both with the intensity of the work and commuting regularly. After about four weeks, I decided to visit the doctor. He took a sample of blood.

Read more ...

Pauline Woods, raising money for ITP, in her own words

As someone with ITP, on a good day I might not feel anything at all, other days I'm covered in bruises then on bad days, I feel like someone has poured all the energy out of my body and I could literally sit down wherever I am (in the office, in the street), and sleep. I have also been asked, on more than one occasion, 

Read more ...

Join us

What are the benefits of membership?
Membership of the ITP Support Association mailing list brings you:

The Platelet, our quarterly journal, access to our 'ITP Friends' counselling volunteers, further information on living with ITP, treatment and the latest research, through our numerous free booklets and factsheets covering items such as insurance and Schools.

Read more ...

Last year many of you may recall that a group of rare disease stakeholders came together to form a Priority Setting Partnership (PSP) to find out what matters to patients, carers and clinicians in the field of Bleeding Disorders. Some people experience problems with bleeding throughout their lives as the result of an inherited disorder such as haemophilia or von Willebrand disease. Others may have long-term problems due to an acquired problem such as immune thrombocytopenia and finally some people may have experienced problems only after childbirth or surgery.  To this end the PSP launched a survey 12 months ago asking for people to consider which questions they think are the most important for researchers to be asking.

Read more ...

Vacancy Book Keeper  / Treasurer

The ITP Support Association is seeking a Book Keeper / Treasurer whose duties will be to:

  • monitor the financial administration of the charity and report to the Chief Executive.
  • oversee the charity’s financial risk-management process;
  • act as a countersignatory on cheques and online banking;
Read more ...

ITP Clinical Centre Survey Results

In late 2017 we invited patients who attended the various ITP Clinical Centres around the country to complete a short patient satisfaction survey. We wanted to assertain the patients perception of how the centres were performing.

The responses to the questions showed that, overall the centre were performing to a high standard. Although the on-line survey closed in February we continued to receive paper surveys until the end of April with 245 surveys being recieved overall.

Read more ...

A new data protection law (GDPR) has now been introduced in the United Kingdom. Therefore we have published a new Privacy Notice to show how we use and protect your information. When joining or renewing your membership of the ITP Support Association online there are additional options to chose regarding how we contact you within your membership profile.

Read more ...

ITP Pocket Log

We are pleased to announce that the Android version of the app is live! It is available to download – free of charge – from Google Play, use the search term “ITP symptom tracker”.

The IOS version has been available for some time from the Apple App Store. 

Everyone involved in the project would like to thank those who sent in ideas for the app after the outline of the project was shared at the ITP Convention last year.

Read more ...