We recently held our Annual ITP Patients Convention, this time, following requests from members we took the Convention to the beautiful City of Chester and its historic racecourse in the North West of the Country.
We recently held the first Local ITP Group Meeting of the year. The meeting was held in the Ancient Stannary Town of Ashburton in the heart of the South Devon countryside, close to the edge of Dartmoor. We must say a big thankyou to member of the ITP Support Association, Sally Rhodes, who stepped forward and volunteered to organise a suitable venue for the meeting.
At the recent ITP Convention, Mervyn Morgan made a short presentation about the ITP Pocket Log and the progress that has been made since its launch in 2017. Since the app went live there have been over 400 downloads plus some excellent feedback.
ITP Pocket Log
We are pleased to announce that the Android version of the app is live! It is available to download – free of charge – from Google Play, use the search term “ITP symptom tracker”.
The IOS version has been available for some time from the Apple App Store.
Everyone involved in the project would like to thank those who sent in ideas for the app after the outline of the project was shared at the ITP Convention last year.
We are also pleased to announce the publication of the ITP Support Associations Partnership Prospectus for 2019/20. This document helps to explain the tremendous reach of the Association (the only National ITP Patient Support Charity) and opportunities that are available for collaboration with potential partners such as sponsorship for items such as the Website, Platelet newsletter and our Booklets. In addition, there are opportunities for partners to work with us at events such as our Annual Convention.
Pauline Woods, raising money for ITP, in her own words
As someone with ITP, on a good day I might not feel anything at all, other days I'm covered in bruises then on bad days, I feel like someone has poured all the energy out of my body and I could literally sit down wherever I am (in the office, in the street), and sleep. I have also been asked, on more than one occasion,
Speakers Presentation Slides from the 2018 ITP International Global Alliance Meeting
The 2018 ITP International Global Alliance meeting was hosted by the ITP Support Association UK and organised by the ITP Support Assocation (United Kingdom) and the Platelet Disorder Support Association (USA), the meeting was held in Chester.
Speakers presetnation slides will be posted here as they become availbale. All slides are in PDF format. The Presentation Slides are the copyright of the individual speakers, the slides are for viewing only, copying and printing is restricted.
Derek Elston, trustee of the ITP Support Association, tells PharmaTimes about his experiences of being diagnosed and living with the rare bleeding disorder
How were you diagnosed with idiopathic thrombocytopenic purpura and what were your symptoms?
I was first diagnosed in 1993 with ITP after working in the Far East for 14 months. At the end I was fairly shattered both with the intensity of the work and commuting regularly. After about four weeks, I decided to visit the doctor. He took a sample of blood.