We are pleased to announce that the ITP Patient Day held in Dublin on Saturday 13th Aptil in association with Novartis Ireland was a fantastic success. We will be publishing a report from the day in due course.
In addition we must also say a big thank you to our speakers:
We recently held the first Local ITP Group Meeting of the year. The meeting was held in the Ancient Stannary Town of Ashburton in the heart of the South Devon countryside, close to the edge of Dartmoor. We must say a big thankyou to member of the ITP Support Association, Sally Rhodes, who stepped forward and volunteered to organise a suitable venue for the meeting.
We recently held our Annual ITP Patients Convention, this time, following requests from members we took the Convention to the beautiful City of Chester and its historic racecourse in the North West of the Country.
Derek Elston, trustee of the ITP Support Association, tells PharmaTimes about his experiences of being diagnosed and living with the rare bleeding disorder
How were you diagnosed with idiopathic thrombocytopenic purpura and what were your symptoms?
I was first diagnosed in 1993 with ITP after working in the Far East for 14 months. At the end I was fairly shattered both with the intensity of the work and commuting regularly. After about four weeks, I decided to visit the doctor. He took a sample of blood.
Pauline Woods, raising money for ITP, in her own words
As someone with ITP, on a good day I might not feel anything at all, other days I'm covered in bruises then on bad days, I feel like someone has poured all the energy out of my body and I could literally sit down wherever I am (in the office, in the street), and sleep. I have also been asked, on more than one occasion,