The ITP Support Association

All Ireland ITP Support Group Meeting August 2021

All Ireland ITP Support Group Meeting August 2021 During the Covid19 pandemic all our ITP Patient Group meetings have taken place on Zoom. This is a recording of the All Ireland ITP Patient Meeting which took place on 3rd August 2021. The expert answering questions is Dr Gerard Crotty. For details…

England and Wales ITP Support Group - July 2021 Meeting

England and Wales ITP Patient Meeting During the Covid19 pandemic all of our ITP Patient Group meetings have taken place on Zoom. The July 2021 ITP Patient Meeting covered all the groups in England and Wales. This is a full recording of that meeting. The expert at this meeting was Prof. Adrian…

First ever plasma appeal over shortfall in donors due to lack of awareness following 20 year gap  

First ever plasma appeal over shortfall in donors due to lack of awareness following 20 year gap NHS Blood and Transplant is today (Wednesday July 21) launching its first campaign for people to donate plasma for medicines. Donation only restarted in April after a gap of more than 20 years and few…

2021 ITP Christmas Card Collection

Yes, I know its only Summer but by popular demand our 2021 Christmas Card Collection is now available to purchase, each design comes in a pack of 10 cards, £3.50 per pack. All proceeds help the Association continue its work with ITP patients. Go to - Click here for the ITP Shop

ITP Group Meetings - Meeting Schedule

ITP Support Association Group Meetings - New Dates Added All-Ireland ITP Group Meeting Next meeting: 3rd August 2021 at 7pm This will be an online Zoom Meeting - To register go to All-Ireland ITP Support Group August 2021 Scotland ITP Group Meeting Next Meeting: 17th August 2021 at 7pm This will be…

ITP Patient Covid-19 Vaccine Survey - Spring 2021 – Initial Findings

ITP Patient Covid-19 Vaccine Survey - Updated Spring 2021 – Initial Findings (1) This paper reports on some initial findings from the ITP Support Association ITP Patient Covid-19 Vaccine Survey which was updated in February 2021. Did having the Covid-19 Vaccine have an effect on Platelet Counts?…

June 2021 Edition of the Platelet

The June 2021 edition of the Platelet is now available to download, this edition contains a report covering our recent ITP Support Association Convention plus the initial findings from our ongoing Covid-19 Vaccine Survey. In addition we take a look ahead to Setember Awareness Week in September. Due…

ITP Patient Covid-19 Updated Vaccine Survey - Spring 2021

ITP Patient Covid-19 Vaccine Survey - Spring 2021 With the Covid-19 vaccine rollout now gaining momentum in many countries and with many patients having now received or about to receive their second dose of the Covid-19 vaccine, we have adapted our original survey to encompass suggestions received…

England and Wales April 2021 ITP Patient Meeting - Full Recording

England and Wales ITP Patient Meeting During the Covid19 pandemic all of our ITP Patient Group meetings have taken place on Zoom. The April 2021 ITP Patient Meeting covered all the groups in England and Wales. The main subject of discussion was Covid-19 Vaccine and Blood Clotting. This is a full…

Scotland April 2021 ITP Patient Meeting

Scotland ITP Patient Meeting April 2021 During the Covid19 pandemic all of our ITP Patient Group meetings have taken place on Zoom. The April 2021 ITP Patient Meeting covered the Scotland Patient Support Group. The main subjects of discussion varied from Paediatric ITP to the Covid-19 Vaccine and…

Covid-19 vaccines and blood clotting. Prof Adrian Newland 02/04/2021

Covid-19 vaccines and blood clotting. Prof Adrian Newland 02/04/2021 There has been much discussion in the media recently regarding the potential development of thrombosis (clots) post-vaccination and a lot of the debate has centred on the Oxford/Astra Zeneca vaccine, although studies world-wide…

Covid-19 vaccination. Assessment by Prof. Adrian Newland

We have also updated the answers to our most frequently asked questions (FAQs) regarding ITP and the Covid-19 vaccines. These can be downloaded here >>> There has been a steady stream of positive news regarding the trials and rollout of the various Covid-19 vaccines in recent weeks, this has also…

I’m not a bubble-wrap boy - storybook to help children understand ITP

I would like to thank Novartis for making this storybook about immune thrombocytopenia (ITP). The book is endorsed in the United Kingdom by the ITP Support Association. I’m not a bubble-wrap boy! can help children and adults alike to understand what it feels like to live with ITP and describes the…

All Ireland ITP Support Group Meeting - Recording February 2021

This meeting (All Ireland Support Group) was the 50th ITP Support Group meeting held by the ITP Support Association since we started these meetings in January 2019. We have come a long way since that first meeting held in a Church Hall in Devon, none of this would have been possible without the…

Rare Disease Day February 28th 2021 by Anthony Heard

Rare Disease Day February 28th 2021 by Anthony Heard On February 2nd I was delighted to join a special Zoom meeting to preview the Rare Disease Day 2021 campaign. It was truly inspiring. The event this year will be bigger than ever and has numerous opportunities for us all to get involved. Even by…

Practical guidance for the management of adults with Immune Thrombocytopenia during the COVID-19 pandemic Updated January 2021

Practical guidance for the management of adults with Immune Thrombocytopenia during the COVID-19 pandemic Updated January 2021 Pavord S, Thachil J, Hunt B, Murphy M, Lowe G, Laffan M, Makris M, Newland A, Provan D, Grainger J, Hill Q. This document aims to provide practical guidance for the…

ITP Patient Perception Survey Roundtable report 2020

Over the years the ITP Support Association has carried out many surveys covering the subject of ITP, this year we ran our Patient Perception Survey 2020, this was a follow up to a previous patient perception survey in 2017/18. With the Association establishing an ever growing range of local ITP…

The ITP Support Association - 25 Years in Pictures

The ITP Support Association - 25 Years in Pictures The ITP Support Association was founded in 1995 by Shirley Watson MBE, this video gives us a glimpse of the many people who have been involved with the organisation over the first 25 years. This video premiered at the opening of the ITP Support…

Introducing Jonny Mellor the New ITP Support Association Ambassador

Introducing Jonny Mellor the New ITP Support Association Ambassador We would like to introduce our new ITP Support Association Ambassador, Olympic hopeful Jonny Mellor, who recently won the British Championships at the #LondonMarathon running 2:10:38. His story is an inspiration for everyone who…

England and Wales ITP Support Meeting Recording January 2021

England and Wales ITP Patient Meeting During the Covid19 pandemic all of our ITP Patient Group meetings have taken place on Zoom. The January 2021 ITP Patient Meeting covered all the groups in England and Wales. This is a recording of that meeting. The experts on hand were Prof. Adrian Newland and…

Scotland ITP Patient Meeting 2021 Recording 21st January 2021

Scotland ITP Patient Meeting During the Covid19 pandemic all of our ITP Patient Group meetings have taken place on Zoom. This is a recording of the 21st January 2021 Scotland ITP Patient Meeting. The expert on hand was Dr Catherine Baggott from Glasgow Royal Infirmary.

EHA - European Affairs Committee Appointment

European Haematology Association (EHA) Appointment We are extremely pleased and proud to announce the appointment of the ITP Support Association Trustee Mr Derek Elston to the European Haematology Associations, European Affairs Committee as the second patient representative from the Patient…

Global Awareness Week - Patient Stories

We are celebrating Global Awareness Week (21st to 25th September 2020, with some fantastic Patient Stories, go to ITP Patient Stories If you would like your ITP story published email it to mervyn.morgan@itpsupport.org.uk

ITP Registries - September 2020 update

UK ITP Registries The ITP Support Association has been a proud supporter of the UK ITP Registries since their inception. In 2020 we continued this support with grants of £22,000 for the Adult ITP Registry at Barts Health NHS Trust and £22,000 for the Childhood ITP Registry at the Royal Manchester…

The Flu vaccine and ITP

The Flu vaccine and ITP. Please note that this general advice on the influenza vaccine has been written by one of the Association's medical advisors, Professor Adrian Newland CBE, but it does not replace any advice given to you by your consultant or GP who knows you and your ITP. The influenza…

International ITP Alliance: Updates and upcoming events

International ITP Alliance: Updates and upcoming events Our good friend, Nancy Potthast, Director of Marketing at the Platelet Disorder Support Association in the United States of America has produced this update for globalITP.org which is the website for the ITP International Alliance. First and…

Webinar: ITP and Covid-19 Q&A - 16th April - Full Recording

Webinar: ITP and Covid-19 Q&A - 16th April - Full Recording The United Kingdom ITP Support Association has a proud record spanning 25 years, providing trusted resources and advice for those living life with ITP. We are acutely aware from the many emails, letters and telephone calls we have received…

New fundraising partner - Viginmoneygiving

Virgin Money Giving >>> The ITP Support Association are pleased to announce that they have joined the fundraising and donation platform #VirginMoneyGiving, this platform is more widely recognised than our previous fundraising partner 'Wonderful' which is due to cease operations at the end of…

Dealing with Difficult Emotions after ITP Diagnosis

In these days of Social Isolation as a result of the Covid-19 emergency many people are understandably feeling stressed and under pressure due to the uncertainty of the current situation. One of the Associations Patient Mentors recently produced an excellent article which was published in the…

ITP Support Association Patient Perception Survey 2020 - Initial Results

ITP Support Association Patient Perception Survey 2020 Over the years the ITP Support Association has carried out many surveys covering the subject of Immune thrombocytopenia (ITP). Many of you would have been aware that the association has now established a growing network of Local ITP Groups…