All Ireland ITP Support Group Meeting 21st February 2024

This is the recording of the All Ireland ITP Support Group Meeting that took place on Wednesday 21st February 2024 with Dr Gerard Crotty, plus Mervyn Morgan ITPSA CEO and members of the ITPSA Board.

A few of the topics discussed:

• Fatigue Number of people with ITP (not newly diagnosed but overall) I promised to find out the overall figure and one being used for a funding application was 23 per 100,000, this is compared to 3 to 4 per 100,000 for newly diagnosed ITP.
• The Spoon Theory https://en.m.wikipedia.org/wiki/Spoon…
• Shingles Vaccine
• Covid
• Rare Disease Day 29th February
• ITPSA Patient Convention May 2024
• Liverpool in-person Patient Meeting 1st March 2024

You can download a copy of the Shared Decision-Making document for FREE from the ITP Support Association website at https://bit.ly/3lNsdKe Our ITP Discussion Guide is also available to download from https://bit.ly/3RlOiye If you require a hard copy of the above mentioned documents please email info@itpsupport.org.uk.with your details.