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CHAIR
Professor Adrian Newland CBE MA FRCP FRCPath
Adrian Newland is Professor of Haematology at Barts and the London School of Medicine and Dentistry, Queen Mary University of London and is an Honorary Consultant at Barts Health NHS Trust. He has a particular interest immune thrombocytopenia and hosts the only tertiary referral centre in the UK; the UK ITP Registry.
He has an interest in novel treatments and support therapy and is involved in guideline development and the multi-disciplinary approach to patient care. He has a research department within the Medical School. He has recently stepped down as Director of Pathology for the Trust. He was chair of the London New Cancer Drugs Group and the Cancer Drug Fund for London and Deputy Chair for the National Chemotherapy Clinical Reference Group. He is chair of the NICE Diagnostic Assessment Programme and of the Healthcare Forum for the UK Accreditation Service and is currently the National Clinical Advisor in Pathology to the NHS.
He has published extensively on Immune thrombocytopenia and supported Shirley Watson when she formed the Association in the mid-90s and is a strong believer in involving patients in their disease and care. He has been a medical advisor to the Association since then. His clinical department hosts many clinical studies and the research department is looking at aspects of the immunology of autoimmune disease and he was instrumental in the development of the national ITP Clinical Forum.
He was President of the British Society for Haematology in 1998 and President of the Royal College of Pathologists from 2005-2008 and is the immediate past-President of the International Society of Hematology. He received the CBE in the 2010 New Year’s Honours List.
Anthony Heard
He was educated at St George the Martyr School Bloomsbury and Dame Alice Owens School Islington & Potters Bar.
He studied banking and financial services at The London Metropolitan University, Moorgate qualifying as an Associate Member of the Chartered Institute of Bankers and then worked in banking in London for 28 years.
Anthony also completed a Certificate in Humanities and a Batchelor of Arts degree with the Open University.
Out of the blue he was diagnosed with ITP in July 2006.
Since 2010 he has worked as a volunteer for the ITP Support Association setting up & making regular contributions to the social media platforms.
He has written numerous articles about his ITP for newspapers and magazines and also writes a regular column for the ITP Support Association publication – The Platelet.
Anthony also takes an active part in the annual Rare Disease Day awareness campaign organised by Genetic Alliance/Rare Disease UK.
When not writing or talking about his ITP, he spends far too much time and energy supporting Tottenham Hotspur Football Club and following any sport far too keenly for his wife’s good (he is still trying to explain offside and LBW to her after 34 years).
He is an avid reader and his other passions are music, film, gardening, food, photography, art, architecture, history, London, travel and writing.
Xenia Norman
Xenia is 63 and still determined to get the most out of life despite her ITP and the fatigue that goes with it. She enjoys travelling and getting out into the country when possible . She is lucky to live on the edge of Horsell Common (famous for the Martians landing there at the start of War of the Worlds) and the Surrey Hills. She also enjoys the cinema and theatre and the odd book when time allows. She has been to nearly all the ITP conferences and was delighted to be the lay member on the research committee. She hopes that being a trustee will allow her to both learn from and give more to the ITP Support Association (the Association).
Before she retired she worked as a pensions lawyer in the City, often training and advising pension scheme trustees. Although she is a bit rusty, she will be able to bring this training and experience to benefit the Association and her fellow trustees. Law was her second career. She first qualified as a social worker with a special interest in placing older and more difficult children in foster and adoptive homes. She hopes to bring both her experience and a creative, can do attitude to her role and to help the Association as it moves forward to confront new issues and medical developments. Never forgetting that the bedrock of its work is to inform and support those suffering from ITP and those who treat them.