Adherence Study (ITP Patient Survey)

Adherence Study (ITP Patient Survey)

This survey is for people with immune thrombocytopenia (ITP) and asks questions about treatments you have received and, more widely, how ITP affects your daily life and the healthcare services you use. Completing the survey will help to understand the current management of ITP better and raise awareness around patient needs, potentially highlighting a need for better treatment options and services.

How long will the survey take?
The survey will take approximately 15 minutes to complete.

Do I have to take part in this survey?
Your participation in this survey is entirely voluntary. You can choose to close the survey and not submit your answers at any time.
To take part, please click this link https://www.survey-xact.dk/LinkCollector?key=S52TTCREUP3N&pid=UK2

How will my personal information be protected?
You will not be asked to input any personal or identifying information. All your answers will be treated as confidential and stored securely per the (GDPR) General Data Protection Regulation. You will not be identified in any reports, publications or presentations related to this survey.

Will I find out about the results of the survey?
The researchers plan to publish the survey results at a scientific congress and in a medical journal.

Who is conducting the survey?
The study is conducted by an independent consultancy (EY Economics) in collaboration with various ITP support groups worldwide, including the ITP Support Association in the United Kingdom and Ireland.

The study is sponsored by Sobi, a rare disease pharmaceutical company.