First Meeting of the North West ITP Support Group

The first meeting of the North West ITP Support Group took place recently in Alderley Edge, details of the next meeting are available at Local Support Group Meetings

 ITP Pocket Log - looking for ideas for Version 2

At the recent ITP Convention, Mervyn Morgan made a short presentation about the ITP Pocket Log and the progress that has been made since its launch in 2017. Since the app went live there have been over 400 downloads plus some excellent feedback.

We are now looking to ITP Pocket Log Version 2, so if anyone has any ideas of features, they would like to see in version 2 please email your ideas to This email address is being protected from spambots. You need JavaScript enabled to view it..

Neil Dudgeon on Pointless Celebrities

A big thank you to friend of the ITP Support Association Neil Dudgeon, who with partner Annette Badland reached the final only to miss out on the jackpot by 1 point. Neil dedicated his £250 winnings to the ITP Support Association.

BMA Foundation for Medical Research – grant winners 2017

Three of the UK's leading ITP specialists, have received grants from the BMA Jon Moulton Award to further their research into ITP. Dr Nichola Cooper, Dr Charlotte Bradbury and Dr Quentin Hill, all three directors of ITP Clinical Centres. Details of the award can be found via this link, BMA Foundation once on the page click on the J Moulton tab.

ITP Partnership Prospectus Published

We are also pleased to announce the publication of the ITP Support Associations Partnership Prospectus for 2019/20. This document helps to explain the tremendous reach of the Association (the only National ITP Patient Support Charity) and opportunities that are available for collaboration with potential partners such as sponsorship for items such as the Website, Platelet newsletter and our Booklets. In addition, there are opportunities for partners to work with us at events such as our Annual Convention.

NICE have published their review of TPO-RA and have updated their approval for Romiplostim and Eltrombopag

Romiplostim is recommended as an option for treating chronic immune (idiopathic) thrombocytopenic purpura in adults, only if:

A new data protection law (GDPR) has now been introduced in the United Kingdom. Therefore we have published a new Privacy Notice to show how we use and protect your information. When joining or renewing your membership of the ITP Support Association online there are additional options to chose regarding how we contact you within your membership profile.

As part of the Care and Support Alliance, the Patients Association has launched a petition to ensure the Government to bring forward their proposals to fix the social care system so it helps all those that need it.

Right now, over one million disabled and older people are left to struggle each day without the support they need. This includes very basic support such as help to get out of bed, wash, and eat. The numbers of people needing help have gone up by 50% in the past seven years and are only going to get larger.

We need 100,000 signatures on our petition to get the Government to act and publish their proposals to give people the basic support they need, which includes meaningful consultation with those who need care