We recently held the first Local ITP Group Meeting of the year. The meeting was held in the Ancient Stannary Town of Ashburton in the heart of the South Devon countryside, close to the edge of Dartmoor. We must say a big thankyou to member of the ITP Support Association, Sally Rhodes, who stepped forward and volunteered to organise a suitable venue for the meeting.
We are also pleased to announce the publication of the ITP Support Associations Partnership Prospectus for 2019/20. This document helps to explain the tremendous reach of the Association (the only National ITP Patient Support Charity) and opportunities that are available for collaboration with potential partners such as sponsorship for items such as the Website, Platelet newsletter and our Booklets. In addition, there are opportunities for partners to work with us at events such as our Annual Convention.
At the recent ITP Convention, Mervyn Morgan made a short presentation about the ITP Pocket Log and the progress that has been made since its launch in 2017. Since the app went live there have been over 400 downloads plus some excellent feedback.
NICE have published their review of TPO-RA and have updated their approval for Romiplostim and Eltrombopag
Romiplostim is recommended as an option for treating chronic immune (idiopathic) thrombocytopenic purpura in adults, only if:
A big thank you to friend of the ITP Support Association Neil Dudgeon, who with partner Annette Badland reached the final only to miss out on the jackpot by 1 point. Neil dedicated his £250 winnings to the ITP Support Association.