England and Wales ITP Support Group Meeting Thursday 9th June 2022

  2022 06 14 copy

 

This is the recording of the England and Wales ITP Support Group Meeting that took place on Thursday 9th June 2022 with Dr. Alice Hart, from Imperial College NHS Trust, Mervyn Morgan CEO of the ITPSA, Rhonda Anderson Senior Patient Mentor, Karen Smith Patient Mentor and Board Member Colin Williams. You can download a copy of the Shared Decision Making document for FREE from the ITP Support Association website at https://www.itpsupport.org.uk/index.php/en/home/shared-decision-making
or if you require a hard copy of it you can email This email address is being protected from spambots. You need JavaScript enabled to view it. Remember, issues with tiredness and fatigue are very debilitating. These can be discussed with your clinician and it is necessary to find ways to deal with these effects. Keep a diary of how you are, and work out how you can do small activities interspersed with rest. To download a copy of the PDF Booklet, titled ‘Fatigue in ITP please click this link: https://www.itpsupport.org.uk/download/Fatigue%20in%20ITP%202019.pdf
The industry sponsored I-WISh 2.0 patient survey is now open and will close in early July 2022. The survey will be used to understand patients’ perceptions towards their ITP, and how ITP can be managed more effectively. The survey results may also be published in scientific literature. All information will be anonymised. If you would like to take part in this industry-sponsored survey please contact This email address is being protected from spambots. You need JavaScript enabled to view it..