ITP Support Association Trustees

Shirley Watson MBE

Shirley Watson is the founder of the ITP Support Association which she formed in 1995 two years after her nine year old son developed the condition. Shirley is a peripatetic music teacher by profession and has diplomas in piano teaching, flute teaching, recorder performing, and in harmony and composition. She has no medical training but her knowledge of ITP and its impact on patients has been learnt through running the charity (in a voluntary capacity) for over 20 years. Her participation has been sought in NICE appraisals of new ITP drugs, she was a member of the working party of clinicians that wrote the ITP Consensus document published in 2010 and she has been consulted by various pharmaceutical companies on the text of their patient information leaflets. She initiated the establishment of ITP Clinical Centres which are recognised as expert centres where difficult ITP cases can be referred.

Shirley is the chair of trustees, and received an MBE (Member of the British Empire) in the 2010 New Year's Honours list for services to ITP. She is married to Frank who is not only the charity's maintenance volunteer, but as project manager of The Platelet Mission was instrumental in turning Shirley's dream of an independent ITP headquarters into reality.

Shirley and Frank are keen gardeners and d-i-y enthusiasts and live with their rescue dog in a thatched cottage in Bolnhurst. They have one son and 3 grandchildren.

 

 

Michael Levy FCA

Michael Levy was educated at Charterhouse, served as an "articled clerk" and qualified as a Chartered Accountant in about 1962. He was granted Fellowship of "The Institute of Chartered Accountants in England & Wales" in 1974, and in 2013 was awarded Life Membership of the Institute.

Before retiring Michael was the financial director of Sol Levy Ltd, a family business manufacturing ladies' handbags under the "Suzy Smith" brand name. Subsequently he has served as Treasurer of local organisations. On the retirement of the previous Treasurer of The ITP Support Association Michael was approached to take his place. He became Treasurer and a Trustee of the charity in January 2012.

Michael's role is to work closely with the other trustees on all financial matters, to claim the Gift Aid due from the Inland Revenue as appropriate, and to prepare the annual accounts for submission to The Charity Commission within the prescribed time.

Michael lives in the village of Bolnhurst with his wife Wendy, and they have 1 dog, 2 cats, 4 chickens and 10 sheep. He is the father of 4, with 6 grandchildren.

 

Derek Elston FRICS

Derek Elston, a chartered surveyor by profession, was born and bred in the Wirral and educated at Kingsmead School in Hoylake and at Ruthin School, N.Wales. On leaving school, he qualified in the valuation of industrial plant and machinery installation. His professional career has taken him on assignments to many countries throughout the world.

Derek has been an external tutor at the College of Estate Management, part of the University of Reading and has also been an examiner in the valuation of plant and machinery for the Incorporated Society of Valuers and Auctioneers. In 1976 he had the honour of being their National Junior Chairman and in the same year was appointed to the board of that professional body, prior to their amalgamation with the Royal Institution of Chartered Surveyors.

He was diagnosed with ITP in 1994 and became a member of the ITP Support Association in 1997. He was appointed a trustee in 2009 since which time he has developed the European connections and is the ITP European representative on the European Haematologist Association patients advocates board. He has attended many patient workshops sponsored by the European Parliament and has participated as patient representative in several other research organisations/committees in the UK and Europe including NICE. He has presented papers in Portugal, The Hague and Brussels on the patients' perspective on ITP and its treatment.

 

 

Professor Adrian Newland CBE MA FRCP FRCPath

Adrian Newland is Professor of Haematology at Barts and the London School of Medicine and Dentistry, Queen Mary University of London and is an Honorary Consultant at Barts Health NHS Trust. He has a particular interest immune thrombocytopenia and hosts the only tertiary referral centre in the UK; the UK ITP Registry.

He has an interest in novel treatments and support therapy and is involved in guideline development and the multi-disciplinary approach to patient care. He has a research department within the Medical School. He has recently stepped down as Director of Pathology for the Trust. He was chair of the London New Cancer Drugs Group and the Cancer Drug Fund for London and Deputy Chair for the National Chemotherapy Clinical Reference Group. He is chair of the NICE Diagnostic Assessment Programme and of the Healthcare Forum for the UK Accreditation Service and is currently the National Clinical Advisor in Pathology to the NHS.

He has published extensively on Immune thrombocytopenia and supported Shirley Watson when she formed the Association in the mid-90s and is a strong believer in involving patients in their disease and care. He has been a medical advisor to the Association since then. His clinical department hosts many clinical studies and the research department is looking at aspects of the immunology of autoimmune disease and he was instrumental in the development of the national ITP Clinical Forum.

He was President of the British Society for Haematology in 1998 and President of the Royal College of Pathologists from 2005-2008 and is the immediate past-President of the International Society of Hematology. He received the CBE in the 2010 New Year’s Honours List.

Colin Williams BA FCA

Colin has suffered from ITP for a number of years and is a retired Chartered Accountant who has considerable experience of working with Charities.  Currently he is the Chairman of a Charitable Trust which is required to financially assist the  “poor and needy” of Bristol.

Historically he was a Member of a former District Health Authority which had responsibility for the local teaching hospitals. This necessitated close liaison with the adjacent medical school which, together with his professional activities, has led Colin to have an interest in academic medicine.

Colin has written a book on the history of his old school, travelled extensively around the world including being a cruise ship lecturer talking on globalisation and is a passionate supporter of his local football team, Bristol City. He has also been very active in public life and is an Honorary Alderman of the City and County of Bristol.

 

 

 

Xenia Norman

Xenia is 63 and still determined to get the most out of life despite her ITP and the fatigue that goes with it. She enjoys travelling and getting out into the country when possible . She is lucky to live on the edge of Horsell Common (famous for the Martians landing there at the start of War of the Worlds) and the Surrey Hills. She also enjoys the cinema and theatre and the odd book when time allows. She has been to nearly all the ITP conferences and was delighted to be the lay member on the research committee. She hopes that being a trustee will allow her to both learn from and give more to the ITP Support Association (the Association)

Before she retired she worked as a pensions lawyer in the City, often training and advising pension scheme trustees.  Although she is a bit rusty, she will be able to bring this training and experience to benefit the  Association and her fellow trustees. Law was her second career. She first qualified as a social worker with a special interest in placing older and more difficult children in foster and adoptive homes. She hopes to bring both her experience and  a creative, can do attitude to her role and to help the Association as it moves forward to confront new issues and medical developments. Never forgetting that the bedrock of its work is to inform and support those suffering from ITP and those who treat them.